| Year |
Citation |
Score |
| 2023 |
Gerido LH, Resnicow K, Stoffel EM, Tomlin T, Cook-Deegan R, Cline M, Coffin A, Holdren J, Majumder MA, He Z. Big advocacy, little recognition: the hidden work of Black patients in precision medicine. Journal of Community Genetics. PMID 37775604 DOI: 10.1007/s12687-023-00673-9 |
0.31 |
|
| 2023 |
Gerido LH, Resnicow K, Stoffel E, Tomlin T, Cook-Deegan R, Cline M, Coffin A, Holdren J, Majumder MA, He Z. Big Advocacy, Little Recognition: The Hidden Work of Black Patients in Precision Medicine. Research Square. PMID 36993185 DOI: 10.21203/rs.3.rs-2340760/v1 |
0.306 |
|
| 2019 |
Cook-Deegan R, McCormack SJ. LeRoy Walters's Legacy of Bioethics in Genetics and Biotechnology Policy. Kennedy Institute of Ethics Journal. 29: 51-66. PMID 31080177 DOI: 10.1353/Ken.2019.0010 |
0.392 |
|
| 2019 |
Bollinger JM, Sanka A, Dolman L, Liao RG, Cook-Deegan R. BRCA1/2 Variant Data-Sharing Practices. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 88-96. PMID 30994073 DOI: 10.1177/1073110519840487 |
0.339 |
|
| 2019 |
Deverka PA, Gilmore D, Richmond J, Smith Z, Mangrum R, Koenig BA, Cook-Deegan R, Villanueva AG, Majumder MA, McGuire AL. Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 70-87. PMID 30994071 DOI: 10.1177/1073110519840486 |
0.376 |
|
| 2019 |
Villanueva AG, Cook-Deegan R, Koenig BA, Deverka PA, Versalovic E, McGuire AL, Majumder MA. Characterizing the Biomedical Data-Sharing Landscape. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 21-30. PMID 30994069 DOI: 10.1177/1073110519840481 |
0.34 |
|
| 2019 |
McGuire AL, Majumder MA, Villanueva AG, Bardill J, Bollinger JM, Boerwinkle E, Bubela T, Deverka PA, Evans BJ, Garrison NA, Glazer D, Goldstein MM, Greely HT, Kahn SD, Knoppers BM, ... ... Cook-Deegan R, et al. Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 12-20. PMID 30994067 DOI: 10.1177/1073110519840480 |
0.364 |
|
| 2019 |
Bollinger JM, Zuk PD, Majumder MA, Versalovic E, Villanueva AG, Hsu RL, McGuire AL, Cook-Deegan R. What is a Medical Information Commons? The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 41-50. PMID 30994065 DOI: 10.1177/1073110519840483 |
0.344 |
|
| 2019 |
Villanueva AG, Cook-Deegan R, Robinson JO, McGuire AL, Majumder MA. Genomic Data-Sharing Practices. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 31-40. PMID 30994063 DOI: 10.1177/1073110519840482 |
0.348 |
|
| 2018 |
Cline MS, Liao RG, Parsons MT, Paten B, Alquaddoomi F, Antoniou A, Baxter S, Brody L, Cook-Deegan R, Coffin A, Couch FJ, Craft B, Currie R, Dlott CC, Dolman L, et al. BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2. Plos Genetics. 14: e1007752. PMID 30586411 DOI: 10.1371/Journal.Pgen.1007752 |
0.393 |
|
| 2018 |
Jones KM, Ankeny RA, Cook-Deegan R. The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project. Journal of the History of Biology. 51: 693-805. PMID 30390178 DOI: 10.1007/S10739-018-9538-7 |
0.414 |
|
| 2018 |
Eisenberg RS, Cook-Deegan R. Universities: The Fallen Angels of Bayh-Dole? Daedalus. 147: 76-89. DOI: 10.1162/Daed_A_00521 |
0.348 |
|
| 2017 |
Rai AK, Cook-Deegan R. Racing for academic glory and patents: Lessons from CRISPR Science. 358: 874-876. PMID 29146800 DOI: 10.1126/Science.Aao2468 |
0.389 |
|
| 2017 |
Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, ... ... Cook-Deegan R, et al. Creating a data resource: what will it take to build a medical information commons? Genome Medicine. 9: 84. PMID 28938910 DOI: 10.1186/S13073-017-0476-3 |
0.405 |
|
| 2017 |
Jasny BR, Wigginton N, McNutt M, Bubela T, Buck S, Cook-Deegan R, Gardner T, Hanson B, Hustad C, Kiermer V, Lazer D, Lupia A, Manrai A, McConnell L, Noonan K, et al. Fostering reproducibility in industry-academia research. Science (New York, N.Y.). 357: 759-761. PMID 28839064 DOI: 10.1126/Science.Aan4906 |
0.332 |
|
| 2017 |
Christensen KD, Uhlmann WR, Roberts JS, Linnenbringer E, Whitehouse PJ, Royal CDM, Obisesan TO, Cupples LA, Butson MB, Fasaye GA, Hiraki S, Chen CA, Siebert U, Cook-Deegan R, Green RC. A randomized controlled trial of disclosing genetic risk information for Alzheimer disease via telephone. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 28726810 DOI: 10.1038/Gim.2017.103 |
0.313 |
|
| 2017 |
Brian JD, Cook-Deegan R. What's the Use? Disparate Purposes of U.S. Federal Bioethics Commissions. The Hastings Center Report. 47: S14-S16. PMID 28543652 DOI: 10.1002/Hast.712 |
0.366 |
|
| 2017 |
Majumder MA, Guerrini CJ, Bollinger JM, Cook-Deegan R, McGuire AL. Sharing data under the 21st Century Cures Act. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 28541278 DOI: 10.1038/Gim.2017.59 |
0.397 |
|
| 2017 |
Cook-Deegan R, Ankeny RA, Jones KM. Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance. Annual Review of Genomics and Human Genetics. 18: 389-415. PMID 28415857 DOI: 10.1146/Annurev-Genom-083115-022515 |
0.409 |
|
| 2017 |
Cook-Deegan R, McGuire AL. Moving beyond Bermuda: Sharing data to build a medical information commons. Genome Research. PMID 28373484 DOI: 10.1101/Gr.216911.116 |
0.362 |
|
| 2017 |
Thorogood A, Cook-Deegan R, Knoppers BM. Public variant databases: liability? Genetics in Medicine. 19: 838-841. PMID 27977006 DOI: 10.1038/Gim.2016.189 |
0.383 |
|
| 2016 |
Majumder MA, Cook-Deegan R, McGuire AL. Beyond Our Borders? Public Resistance to Global Genomic Data Sharing. Plos Biology. 14: e2000206. PMID 27806054 DOI: 10.1371/Journal.Pbio.2000206 |
0.377 |
|
| 2016 |
Messner DA, Al Naber J, Koay P, Cook-Deegan R, Majumder M, Javitt G, Deverka P, Dvoskin R, Bollinger J, Curnutte M, Chandrasekharan S, McGuire A. Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel. Applied & Translational Genomics. 10: 19-24. PMID 27668172 DOI: 10.1016/J.Atg.2016.05.004 |
0.374 |
|
| 2016 |
Christensen KD, Roberts JS, Whitehouse PJ, Royal CD, Obisesan TO, Cupples LA, Vernarelli JA, Bhatt DL, Linnenbringer E, Butson MB, Fasaye GA, Uhlmann WR, Hiraki S, Wang N, Cook-Deegan R, et al. Disclosing Pleiotropic Effects During Genetic Risk Assessment for Alzheimer Disease: A Randomized, Controlled Trial. Annals of Internal Medicine. PMID 26810768 DOI: 10.7326/M15-0187 |
0.322 |
|
| 2015 |
Bubela T, Vishnubhakat S, Cook-Deegan R. The mouse that trolled: the long and tortuous history of a gene mutation patent that became an expensive impediment to Alzheimer's research Journal of Leukocyte Biology. 2: 213-262. PMID 26594384 DOI: 10.1093/Jlb/Lsv011 |
0.397 |
|
| 2015 |
Grady C, Eckstein L, Berkman B, Brock D, Cook-Deegan R, Fullerton SM, Greely H, Hansson MG, Hull S, Kim S, Lo B, Pentz R, Rodriguez L, Weil C, Wilfond BS, et al. Broad Consent for Research With Biological Samples: Workshop Conclusions. The American Journal of Bioethics : Ajob. 15: 34-42. PMID 26305750 DOI: 10.1080/15265161.2015.1062162 |
0.379 |
|
| 2015 |
Vorderstrasse A, Katsanis SH, Minear MA, Yang N, Rakhra-Burris T, Reeves JW, Cook-Deegan R, Ginsburg GS, Ann Simmons L. Perceptions of Personalized Medicine in an Academic Health System: Educational Findings. Journal of Contemporary Medical Education. 3: 14-19. PMID 26236542 DOI: 10.5455/Jcme.20150408050414 |
0.319 |
|
| 2015 |
Katsanis SH, Minear MA, Vorderstrasse A, Yang N, Reeves JW, Rakhra-Burris T, Cook-Deegan R, Ginsburg GS, Simmons LA. Perspectives on genetic and genomic technologies in an academic medical center: the duke experience. Journal of Personalized Medicine. 5: 67-82. PMID 25854543 DOI: 10.3390/Jpm5020067 |
0.43 |
|
| 2015 |
Bubela T, Cook-Deegan R. Keeping score, strengthening policy and fighting bad actors over access to research tools Nature Biotechnology. 33: 143-147. PMID 25658278 DOI: 10.1038/Nbt.3131 |
0.359 |
|
| 2014 |
Cheon JY, Mozersky J, Cook-Deegan R. Variants of uncertain significance in BRCA: a harbinger of ethical and policy issues to come? Genome Medicine. 6: 121-121. PMID 25593598 DOI: 10.1186/S13073-014-0121-3 |
0.417 |
|
| 2014 |
Cook-Deegan R, Niehaus A. After Myriad: Genetic Testing in the Wake of Recent Supreme Court Decisions about Gene Patents. Current Genetic Medicine Reports. 2: 223-241. PMID 25401053 DOI: 10.1007/S40142-014-0055-5 |
0.346 |
|
| 2014 |
Cook-Deegan R, Chandrasekharan S. Patents and genome-wide DNA sequence analysis: is it safe to go into the human genome? The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 42: 42-50. PMID 25298290 DOI: 10.1111/Jlme.12161 |
0.319 |
|
| 2013 |
Caulfield T, Evans J, McGuire A, McCabe C, Bubela T, Cook-Deegan R, Fishman J, Hogarth S, Miller FA, Ravitsky V, Biesecker B, Borry P, Cho MK, Carroll JC, Etchegary H, et al. Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate. Plos Biology. 11: e1001699. PMID 24223516 DOI: 10.1371/Journal.Pbio.1001699 |
0.336 |
|
| 2013 |
Wiechers IR, Perin NC, Cook-Deegan R. The emergence of commercial genomics: analysis of the rise of a biotechnology subsector during the Human Genome Project, 1990 to 2004. Genome Medicine. 5: 83-83. PMID 24050173 DOI: 10.1186/Gm487 |
0.334 |
|
| 2013 |
Rai AK, Cook-Deegan R. Moving Beyond “Isolated” Gene Patents Science. 341: 137-138. PMID 23811224 DOI: 10.1126/Science.1242217 |
0.324 |
|
| 2013 |
Agarwal A, Sayres LC, Cho MK, Cook-Deegan R, Chandrasekharan S. Commercial landscape of noninvasive prenatal testing in the United States. Prenatal Diagnosis. 33: 521-31. PMID 23686656 DOI: 10.1002/Pd.4101 |
0.365 |
|
| 2013 |
Mathews DJ, Cook-Deegan R, Bubela T. Patents and misplaced angst: lessons for translational stem cell research from genomics. Cell Stem Cell. 12: 508-12. PMID 23642360 DOI: 10.1016/J.Stem.2013.04.015 |
0.334 |
|
| 2013 |
Caulfield T, Chandrasekharan S, Joly Y, Cook-Deegan R. Harm, hype and evidence: ELSI research and policy guidance. Genome Medicine. 5: 21. PMID 23534337 DOI: 10.1186/Gm425 |
0.398 |
|
| 2013 |
Baldwin AL, Cook-Deegan R. Constructing narratives of heroism and villainy: case study of Myriad's BRACAnalysis ® compared to Genentech's Herceptin ® Genome Medicine. 5: 8-8. PMID 23369278 DOI: 10.1186/Gm412 |
0.303 |
|
| 2013 |
Cook-Deegan R, Conley JM, Evans JP, Vorhaus D. The next controversy in genetic testing: clinical data as trade secrets? European Journal of Human Genetics : Ejhg. 21: 585-8. PMID 23150081 DOI: 10.1038/Ejhg.2012.217 |
0.42 |
|
| 2011 |
Cook-Deegan R. Genome-sequencing anniversary. Gene patents: the shadow of uncertainty. Science. 331: 873-874. PMID 21330530 DOI: 10.1126/Science.1203458 |
0.306 |
|
| 2010 |
Carbone J, Gold ER, Sampat B, Chandrasekharan S, Knowles L, Angrist M, Cook-Deegan R. DNA patents and diagnostics: not a pretty picture. Nature Biotechnology. 28: 784-91. PMID 20697400 DOI: 10.1038/Nbt0810-784 |
0.343 |
|
| 2010 |
Cook-Deegan R, Heaney C. Patents in genomics and human genetics. Annual Review of Genomics and Human Genetics. 11: 383-425. PMID 20590431 DOI: 10.1146/Annurev-Genom-082509-141811 |
0.42 |
|
| 2010 |
Powell A, Chandrasekharan S, Cook-Deegan R. Spinocerebellar ataxia: patient and health professional perspectives on whether and how patents affect access to clinical genetic testing. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S83-S110. PMID 20393313 DOI: 10.1097/Gim.0B013E3181D67E44 |
0.361 |
|
| 2010 |
Skeehan K, Heaney C, Cook-Deegan R. Impact of gene patents and licensing practices on access to genetic testing for Alzheimer disease Genetics in Medicine. 12. PMID 20393312 DOI: 10.1097/Gim.0B013E3181D5A68E |
0.354 |
|
| 2010 |
Colaianni A, Chandrasekharan S, Cook-Deegan R. Impact of gene patents and licensing practices on access to genetic testing and carrier screening for Tay-Sachs and Canavan disease. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S5-S14. PMID 20393311 DOI: 10.1097/Gim.0B013E3181D5A669 |
0.355 |
|
| 2010 |
Chandrasekharan S, Heaney C, James T, Conover C, Cook-Deegan R. Impact of gene patents and licensing practices on access to genetic testing for cystic fibrosis. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S194-211. PMID 20393308 DOI: 10.1097/Gim.0B013E3181D7Cf7D |
0.349 |
|
| 2010 |
Chandrasekharan S, Pitlick E, Heaney C, Cook-Deegan R. Impact of gene patents and licensing practices on access to genetic testing for hereditary hemochromatosis. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S155-70. PMID 20393306 DOI: 10.1097/Gim.0B013E3181D7Acb0 |
0.345 |
|
| 2010 |
Cook-Deegan R, DeRienzo C, Carbone J, Chandrasekharan S, Heaney C, Conover C. Impact of gene patents and licensing practices on access to genetic testing for inherited susceptibility to cancer: comparing breast and ovarian cancers with colon cancers. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S15-38. PMID 20393305 DOI: 10.1097/Gim.0B013E3181D5A67B |
0.313 |
|
| 2010 |
Angrist M, Chandrasekharan S, Heaney C, Cook-Deegan R. Impact of gene patents and licensing practices on access to genetic testing for long QT syndrome. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S111-54. PMID 20393304 DOI: 10.1097/Gim.0B013E3181D68293 |
0.342 |
|
| 2010 |
Cook-Deegan R, Heaney C. Gene patents and licensing: case studies prepared for the Secretary's Advisory Committee on Genetics, Health, and Society. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: S1-2. PMID 20393303 DOI: 10.1097/Gim.0B013E3181D694B0 |
0.378 |
|
| 2010 |
Kepler TB, Crossman C, Cook-Deegan R. Metastasizing patent claims on BRCA1. Genomics. 95: 312-314. PMID 20226239 DOI: 10.1016/J.Ygeno.2010.03.003 |
0.333 |
|
| 2009 |
Chandrasekharan S, Cook-Deegan R. Gene patents and personalized medicine - what lies ahead? Genome Medicine. 1: 92. PMID 19804612 DOI: 10.1186/Gm92 |
0.433 |
|
| 2009 |
Colaianni A, Cook-Deegan R. Columbia University's Axel patents: technology transfer and implications for the Bayh-Dole Act. Milbank Quarterly. 87: 683-715. PMID 19751286 DOI: 10.1111/J.1468-0009.2009.00575.X |
0.389 |
|
| 2009 |
Cook-Deegan R. Dr. Varmus Goes to Washington American Scientist. 97: 152. DOI: 10.1511/2009.77.152 |
0.315 |
|
| 2009 |
Magnus D, Cho MK, Cook-Deegan R. Direct-to-consumer genetic tests: Beyond medical regulation? Genome Medicine. 1. DOI: 10.1186/Gm17 |
0.367 |
|
| 2009 |
Chandrasekharan S, Perin NC, Wiechers IR, Cook-Deegan R. Public-Private Interactions in Genomic Medicine: Research and Development Genomic and Personalized Medicine, Two-Vol Set. 434-444. DOI: 10.1016/B978-0-12-369420-1.00037-8 |
0.351 |
|
| 2008 |
So AD, Sampat BN, Rai AK, Cook-Deegan R, Reichman JH, Weissman R, Kapczynski A. Is Bayh-Dole good for developing countries? Lessons from the US experience. Plos Biology. 6: e262. PMID 18959484 DOI: 10.1371/Journal.Pbio.0060262 |
0.379 |
|
| 2008 |
Karp DR, Carlin S, Cook-Deegan R, Ford DE, Geller G, Glass DN, Greely H, Guthridge J, Kahn J, Kaslow R, Kraft C, Macqueen K, Malin B, Scheuerman RH, Sugarman J. Ethical and practical issues associated with aggregating databases. Plos Medicine. 5: e190. PMID 18816162 DOI: 10.1371/Journal.Pmed.0050190 |
0.41 |
|
| 2007 |
Cook-Deegan R. The science commons in health research: structure, function, and value. Journal of Technology Transfer. 32: 133-156. PMID 27570367 DOI: 10.1007/S10961-006-9016-9 |
0.388 |
|
| 2007 |
Davidson EM, Frothingham R, Cook-Deegan R. Practical experiences in dual-use review Science. 316: 1432-1433. PMID 17556571 DOI: 10.1126/Science.1142873 |
0.339 |
|
| 2007 |
Cook-Deegan R. Erratum: The science commons in health research: Structure, function, and value (Journal of Technology Transfer (2007) vol. 32 10.1007/ s10961-006-9016-9) Journal of Technology Transfer. 32. DOI: 10.1007/S10961-006-9028-5 |
0.32 |
|
| 2006 |
Cook-Deegan R, Dedeurwaerdere T. The science commons in life science research: structure, function, and value of access to genetic diversity International Social Science Journal. 58: 299-317. PMID 32336774 DOI: 10.1111/J.1468-2451.2006.00620.X |
0.374 |
|
| 2006 |
Fore J, Wiechers IR, Cook-Deegan R. The effects of business practices, licensing, and intellectual property on development and dissemination of the polymerase chain reaction: case study. Journal of Biomedical Discovery and Collaboration. 1: 7. PMID 16817955 DOI: 10.1186/1747-5333-1-7 |
0.33 |
|
| 2006 |
Tofano D, Wiechers IR, Cook-Deegan R. Edwin Southern, DNA blotting, and microarray technology: A case study of the shifting role of patents in academic molecular biology Life Sciences, Society and Policy. 2: 50. DOI: 10.1186/1746-5354-2-2-50 |
0.359 |
|
| 2005 |
Zick CD, Mathews CJ, Roberts JS, Cook-Deegan R, Pokorski RJ, Green RC. Genetic Testing For Alzheimer’s Disease And Its Impact On Insurance Purchasing Behavior Health Affairs. 24: 483-490. PMID 15757934 DOI: 10.1377/Hlthaff.24.2.483 |
0.321 |
|
| 2002 |
Bar-Shalom A, Cook-Deegan R. Patents and Innovation in Cancer Therapeutics: Lessons from CellPro Milbank Quarterly. 80: 637-676. PMID 12532643 DOI: 10.1111/1468-0009.00027 |
0.403 |
|
| 1998 |
Burris J, Cook-Deegan R, Alberts B. The human genome project after a decade: Policy issues Nature Genetics. 20: 333-335. PMID 9843203 DOI: 10.1038/3803 |
0.38 |
|
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